Hello, everyone! Welcome to the site. If you’re here, you either have Crohn’s, know someone with Crohn’s or are curious about the disease. Or maybe you’re a very family oriented person, so you’d like to just unwind with some stories of mom-ing. And if you have a child with some sort of disability or special needs, you’re in luck, because so do I. No matter the reason, Crohn’s Chronicles isn’t just about Crohn’s Disease. I explore all sorts of themes of health, including mental health, along with just the foundations of parenting and family. But first, I figured I’d tell you all about myself and my family, so you can get to know us before jumping into my blog and videos!
My name’s Mara Jade and I was diagnosed with Crohn’s Disease in August of 2018 when I was 19 years old. When I was first diagnosed, I had absolutely no idea what it even was. I was terrified, to say the least and I fell into a really dark state of mind. Since then, I have isolated myself and even though that wasn’t the healthiest thing to do, I learned so much about myself and life in general. I’ve come out as a stronger and more positive person and have been taking the initiative to have a much better outlook on life. We only have one life to live, so why waste it feeling sad. I have also had an ileostomy surgery due to Crohn’s, along with several surgeries relating to this shitty disease.
My son Caspian, is two. He is lucky, because as of right now, his only issue with health is the common cold and occasionally pink eye, from daycare. My husband, Chris is usually at work while I’ve been a stay at home mom, mostly focusing on writing and going to college online. I own a few reptiles along with some dogs, cats and hedgehogs, all considered my babies as well. We also have a son named Fox. He was born January 27, 2020, while I was 29 weeks pregnant and was in NICU for 87 days, and he himself experienced a multitude of issues, including Hydrocephalus, heart defects, bowel problems and the future potential of developmental problems. I post quite a bit on him as well, for all you parents who struggle with similar ordeals.
I’ve created this website and Youtube channel to try and help others who are suffering from my disease or to inform others and spread awareness on it, because let’s be real, half of you probably still don’t know what Crohn’s is. But I also have now been able to also showcase my sons problems as well, so maybe other parents can feel comfort in knowing they aren’t alone.
I also have an etsy shop, called Desert Witch Creations, where I sell my handmade artwork and donate 1% of proceeds from each sale to one of four charities. You can find my shop through this site under the Desert Witch Creations Shop tab.
While we are still learning about all of these random health issues that keep popping up in our lives, I hope you all choose to join me by reading my blog and watching my videos. I do not claim to know everything about anything, because lord knows I don’t. I’m just trying to show others that there are people out here with problems too, and you are not alone.
Thanks for visiting and hope you can find some useful information within this site!
